EU-Project: RightTimePlaceCare

The 7th Framework Project RightTimePlaceCare was carried out between 1/2010 and 9/2013 and was scientifically and administratively coordinated by Witten/Herdecke University (UW/H). Professor Dr. phil. Gabriele Meyer (currently: Martin-Luther-University Halle-Wittenberg) was responsible for the scientific co-ordination. Dr. rer. medic. Astrid Stephan was in charge of the project management. In total, partners from eight European countries participated in RightTimePlaceCare.

The development of European „Good Practice“ recommendations for caring and looking after people with dementia at the transition between home care and residential long-term care was the target of RightTimePlaceCare.

Various disciplines, such as nursing science, geriatric medicine, geriatric psychiatry, social sciences, psychology and economy, were represented in the consortium.

Mixed methods were used to process the research issues, i.e. literature reviews (systematic and integrative), expert interviews, cohort study, focus groups and panels of experts. RightTimePlaceCare comprised six working packages.

European Consortium and Steering Committee Members

Witten/Herdecke University, Germany
Professor Dr. Gabriele Meyer

Fundació Privada Clinic per la Recerca Biomedica, Spain
Dr. Adela Zabalegui

Lunds Universiteit, Sweden
Professor Dr. Ingalill R Hallberg

Maastricht University, The Netherlands
Professor Dr. Jan Hamers

University of Tartu, Estonia
Professor Dr. Kai Saks

Manchester University, UK
Professor Dr. David Challis

Gérontôpole, University of Toulouse, France
Dr. Maria Soto Martin

University of Turku, Finland
Professor Dr. Helena Leino Kilpi

Publications (as by August 2017)

• Verbeek H, Meyer G, Leino-Kilpi H, Zabalegui A, Hallberg IR, Saks K, Soto ME, Challis D, Sauerland D, Hamers JP; RightTimePlaceCare Consortium. A European study investigating patterns of transition from home care towards institutional dementia care: the protocol of a RightTimePlaceCare study. BMC Public Health 2012; 12: 68
• Hallberg IR, Leino-Kilpi H, Meyer G, Raamat K, Soto Martin M, Sutcliffe C, Zabalegui A: Dementia care in eight European Countries: Developing a mapping system to explore. J Nurs Scholarsh 2013; 45: 412-42
• Stephan A, Mayer H, Renom Guiteras A, Meyer G. Validity, reliability, and feasibility of the German version of the Caregiver Reaction Assessment scale (G-CRA): a validation study. Int Psychogeriatr 2013; 25: 1621-1628
• Sutcliffe CL, Roe B, Jasper R, Jolley D, Challis DJ. People with dementia and carers' experiences of dementia care and services: Outcomes of a focus group study. Dementia (London) 2013, [Epub ahead of print]
• Afram B, Stephan A, Verbeek H, Bleijlevens MH, Suhonen R, Sutcliffe C, Raamat K, Cabrera E, Soto ME, Hallberg IR, Meyer G, Hamers JP; RightTimePlaceCare Consortium. Reasons for Institutionalization of People With Dementia: Informal Caregiver Reports From 8 European Countries. J Am Med Dir Assoc 2014; 15: 108-116
• Beerens HC, Sutcliffe C, Renom-Guiteras A, Soto ME, Suhonen R, Zabalegui A, Bökberg C, Saks K, Hamers JP; on behalf of the RightTimePlaceCare Consortium. Quality of Life of and Quality of Care for People with Dementia Receiving Long Term Institutional Care or Professional Home Care: The European RightTimePlaceCare Study. J Am Med Dir Assoc 2014; 15: 54-61
• Bökberg C, Ahlström G, Karlsson S, Hallberg IR, Janlöv AC. Best practice and needs for improvement in the chain of care for persons with dementia in Sweden: a qualitative study based on focus group interviews. BMC Health Services Research 2014; 14: 596
• Cabrera E, Sutcliffe C, Verbeek H, Saks S, Soto-Martín M, Meyer G, Leino-Kilpi H, Karlsson S, Zabalegui A: Non-pharmacological interventions as a best practice strategy in people with dementia living in nursing homes. A systematic review. EGM 2015; 6: 134-150
• de Mauleon A, Sourdet S, Renom-Guiteras A, Gillette-Guyonnet S, Leino-Kilpi H, Karlsson S, Bleijlevens M, Zabategui A, Saks K, Vellas B, Jolley D, Soto M; RightTimePlaceCare Consortium. Associated Factors With Antipsychotic Use in Long-Term Institutional Care in Eight European Countries: Results From the RightTimePlaceCare Study. J Am Med Dir Assoc 2014; 5: 812-818
• Giebel CM, Sutcliffe C, Stolt M, Karlsson S, Renom-Guiteras A, Soto M, Verbeek H, Zabalegui A, Challis D. Deterioration of basic activities of daily living and their impact on quality of life across different cognitive stages of dementia: a European study. Int Psychogeriatr 2014; 26: 1283-1293
• Zabalegui A, Hamers JP, Karlsson S, Leino-Kilpi H, Renom-Guiteras A, Saks K, Soto M, Sutcliffe C, Cabrera E. Best practices interventions to improve quality of care of people with dementia living at home. Patient Educ Couns 2014; 95: 175-184
• Afram B, Verbeek H, Bleijlevens MH, Challis D, Leino-Kilpi H, Karlsson S, Soto ME, Renom-Guiteras A, Saks K, Zabalegui A, Hamers JP; the RightTimePlaceCare consortium. Predicting institutional long-term care admission in dementia: a mixed-methods study of informal caregivers' reports. J Adv Nurs 2015; 71: 1351-1362
• Alvira MC, Risco E, Cabrera E, Farré M, Rahm Hallberg I, Bleijlevens MH, Meyer G, Koskenniemi J, Soto ME, Zabalegui A; The RightTimePlaceCare Consortium. The association between positive-negative reactions of informal caregivers of people with dementia and health outcomes in eight European countries: a cross-sectional study. J Adv Nurs 2015; 71: 1417-1434
• Beerens HC, Zwakhalen SM, Verbeek H, Ruwaard D, Ambergen AW, Leino-Kilpi H, Stephan A, Zabalegui A, Soto M, Saks K, Bökberg C, Sutcliffe CL, Hamers JP; the RightTimePlaceCare Consortium. Change in quality of life of people with dementia recently admitted to long-term care facilities. J Adv Nurs 2015; 71: 1435-1447
• Bleijlevens MH, Stolt M, Stephan A, Zabalegui A, Saks K, Sutcliffe C, Lethin C, Soto ME, Zwakhalen SM; the RightTimePlaceCare Consortium. Changes in caregiver burden and health-related quality of life of informal caregivers of older people with Dementia: evidence from the European RightTimePlaceCare prospective cohort study. J Adv Nurs 2015; 71: 1378-1391
• Bremer P, Cabrera E, Leino-Kilpi H, Lethin C, Saks K, Sutcliffe C, Soto M, Zwakhalen, Sandra M G, Wübker A. Informal dementia care: Consequences for caregivers' health and health care use in 8 European countries. Health Policy 2015; 119: 1459-1471
• Bökberg C, Ahlström G, Leino-Kilpi H, Soto-Martin ME, Cabrera E, Verbeek H, Saks K, Stephan A, Sutcliffe C, Karlsson S. Care and Service at Home for Persons With Dementia in Europe. J Nurs Scholarsh 2015; 47: 407-416
• Renom-Guiteras A, Meyer G, Thürmann PA. The EU(7)-PIM list: a list of potentially inappropriate medications for older people consented by experts from seven European countries. Eur J Clin Pharmacol 2015; 71: 861-875
• Farré M, Haro JM, Kostov B, Alvira C, Risco E, Miguel S, Cabrera E, Zabalegui A. Direct and indirect costs and resource use in dementia care: A cross-sectional study in patients living at home. Int J Nurs Stud 2016; 55: 39-49
• Giebel CM, Sutcliffe C, Challis D. Activities of daily living and quality of life across different stages of dementia: a UK study. Aging Ment Health 2015; 19: 63-71
• Karlsson S, Bleijlevens M, Roe B, Saks K, Martin MS, Stephan A, Suhonen R, Zabalegui A, Hallberg IR. Dementia care in European countries, from the perspective of people with dementia and their caregivers. J Adv Nurs 2015; 71: 1405-1416
• Koskenniemi J, Leino-Kilpi H, Suhonen R. Manifestation of respect in the care of older patients in long-term settings. Scand J Caring Sci 2015; 29: 288-296
• Perry L. Dementia care in European countries - findings from the RightTimePlaceCare study. J Adv Nurs 2015; 71: 1336-1337
• Risco E, Cabrera E, Jolley D, Stephan A, Karlsson S, Verbeek H, Saks K, Hupli M, Sourdet S, Zabalegui A; RightTimePlaceCare Consortium. The association between physical dependency and the presence of neuropsychiatric symptoms, with the admission of people with dementia to a long-term care institution: A prospective observational cohort study. Int J Nurs Stud 2015; 52: 980-987
• Saks K, Tiit EM, Verbeek H, Raamat K, Armolik A, Leibur J, Meyer G, Zabalegui A, Leino-Kilpi H, Karlsson S, Soto M, Tucker S; the RightTimePlaceCare Consortium. Most appropriate placement for people with dementia: individual experts' vs. expert groups' decisions in eight European countries. J Adv Nurs 2015; 71: 1363-1377
• Stephan A, Afram B, Koskenniemi J, Verbeek H, Soto ME, Bleijlevens MH, Sutcliffe C, Lethin C, Risco E, Saks K, Hamers JP, Meyer G; the RightTimePlaceCare Consortium. Older persons with dementia at risk for institutionalization in eight European countries: a cross-sectional study on the perceptions of informal caregivers and healthcare professionals. J Adv Nurs 2015; 71: 1392-1404
• Stephan A, Möhler R, Renom-Guiteras A, Meyer M. Successful collaboration in dementia care from the perspectives of healthcare professionals and informal carers in Germany: results from a focus group study. BMC Health Services Research 2015; 15: 208
• Suhonen R, Stolt M, Koskenniemi J, Leino-Kilpi H. Right for knowledge - the perspective of significant others of Persons with Memory Disorders. Scandinavian Journal of Caring Sciences 2015; 29: 83-92
• Sutcliffe CL, Giebel CM, Jolley D, Challis DJ. Experience of burden in carers of people with dementia on the margins of long-term care. Int J Geriatr Psychiatry 2016; 31: 101-108
• Sutcliffe CL, Roe B, Jasper R, Jolley D, Challis DJ. People with dementia and carers' experiences of dementia care and services: Outcomes of a focus group study. Dementia, November 2015; 14: 769-787
• Tucker S, Sutcliffe C, Bowns I, Challis D, Saks K, Verbeek H, Cabrera E, Karlsson S, Leino-Kilpi H, Meyer G, Soto ME; RightTimePlaceCare Consortium. Improving the mix of institutional and community care for older people with dementia: an application of the balance of care approach in eight European countries. Aging Ment Health 2015 Sep 1: 1-12 [Epub ahead of print]
• Verbeek H, Meyer G, Challis D, Zabalegui A, Soto ME, Saks K, Leino-Kilpi H, Karlsson S, Hamers JP; RightTimePlaceCare Consortium. Inter-country exploration of factors associated with admission to long-term institutional dementia care: evidence from the RightTimePlaceCare study. J Adv Nurs 2015; 71: 1338-1350
• Wübker A, Zwakhalen SMG, Challis D, Suhonen R, Karlsson S, Zabalegui A, Soto M, Saks K, Sauerland D: Costs of care for people with dementia just before and after nursing home placement: primary data from 8 European countries. EJHE 2015; 16: 689-707
• Bremer P, Cabrera E, Leino-Kilpi H, Lethin C, Saks K, Sutcliffe C, Soto M, Zwakhalen SM, Wübker A; RightTimePlaceCare Consortium. Informal dementia care: Consequences for caregivers' health and health care use in 8 European countries. Health Policy 2015; 119: 1459-1471
• Giebel CM, Davies S, Clarkson P, Sutcliffe C, Challis D; Members of the HoSt-D (Home Support in Dementia) Programme Management Groupl. Costs of formal and informal care at home for people with dementia: 'Expert panel' opinions from staff and informal carers. Dementia (London) 2016 Aug 22. pii: 1471301216665705. [Epub ahead of print]
• Tucker S, Brand C, Sutcliffe C, Challis D, Saks K, Verbeek H, Cabrera E, Karlsson S, Leino-Kilpi H, Stephan A, Soto ME; RightTimePlaceCare Consortium. What Makes Institutional Long-Term Care the Most Appropriate Setting for People With Dementia? Exploring the Influence of Client Characteristics, Decision-Maker Attributes, and Country in 8 European Nations. J Am Med Dir Assoc 2016; 17: 465.e9-465.e15
• Lethin C, Leino-Kilpi H, Roe B, Soto MM, Saks K, Stephan A, Zwakhalen S, Zabalegui A, Karlsson S; RightTimePlaceCare Consortium. Formal support for informal caregivers to older persons with dementia through the course of the disease: an exploratory, cross-sectional study. BMC Geriatr 2016; 16: 32
• Hallberg IR, Cabrera E, Jolley D, Raamat K, Renom-Guiteras A, Verbeek H, Soto M, Stolt M, Karlsson S. Professional care providers in dementia care in eight European countries; their training and involvement in early dementia stage and in home care. Dementia 2016; 15: 931-957
• Risco E, Cabrera E, Farré M, Alvira C, Miguel S, Zabalegui A. Perspectives About Health Care Provision in Dementia Care in Spain: A Qualitative Study Using Focus-Group Methodology. Am J Alzheimers Dis Other Demen 2016; 31: 223-230
• Lethin C, Hallberg IR, Karlsson S,  Janlöv A-C. Family caregivers experiences of formal care when caring for persons with dementia through the process of the disease. Scand J Caring Sci 2016; 30: 526-534
• Sutcliffe C, Giebel C, Bleijlevens M, Lethin C, Stolt M, Saks K, Soto ME, Meyer G, Zabalegui A, Chester H, Challis D; RightTimePlaceCare Consortium. Caring for a Person With Dementia on the Margins of Long-Term Care: A Perspective on Burden From 8 European Countries. J Am Med Dir Assoc 2017, Jul 18. pii: S1525-8610(17)30311-0. doi: 10.1016/j.jamda.2017.06.004
• Bremer P, Challis D, Hallberg IR, Leino-Kilpi H, Saks K, Vellas B, Zwakhalen SMG, Sauerland D; RightTimePlaceCare Consortium. Informal and formal care: Substitutes or complements in care for people with dementia? Empirical evidence for 8 European countries. Health Policy 2017; 121: 613-622

Publications in German

• Meyer G, Renom Guiteras A, Schmitz A, on behalf of the RightTimePlaceCare Consortium (2012): The European project RightTimePlaceCare. In Jochen René Thyrian, Wolfgang Hoffmann (Eds.) Dementia Care Research: Scientific evidence, current issues and future perspectives. Minutes from an international workshop in Greifswald (64-72). Pabst Science Publisher.
• Stephan A, Renom Guiteras A, Juchems J, Meyer G. Der Balance of Care Ansatz zur Generierung passgenauer Versorgungsangebote für Menschen mit Demenz zwischen Häuslichkeit und Pflegeheim: Anwendungserfahrungen in Deutschland. Zeitschrift fur Evidenz, Fortbildung und Qualität im Gesundheitswesen 2013; 107 (9-10): 597-605
• Stephan A, Afram B,  Renom Guiteras A, Gerlach A, Meyer G. Menschen mit Demenz im Pflegeheim: Angehörige geben Auskunft zu den Gründen des Einzugs und wie sie die Situation danach erleben. Pflegezeitschrift 2013; 66: 208-212
• Sniatecki S, Meyer G, Renom-Guiteras A, Dichter MN, Mayer H, Stephan A. Polarität des frei formulierten MMST-Satzes und Befinden von Menschen mit Demenz: Ergebnisse einer Querschnittstudie. Z Gerontol Geriatr 2016 May 12. [Epub ahead of print]
• Meyer G, Stephan A: Mit Demenz am richtigen Ort. Gesundheit und Gesellschaft 2016; 19: 33-37

Publications in Suomi

• Koskenniemi J, Stolt M, Hupli M, Suhonen R, Leino-Kilpi H. Muistipotilaan haastattelu – haaste kliinikoille ja tutkijoille. Tutkiva Hoitotyö 2014; 12: 4-11
• Lehtiranta S, Leino-Kilpi H, Koskenniemi J, Jartti L, Hupli M, Stolt M & Suhonen R. Muistisairaan henkilön kotoa laitoshoitoon siirtymistä jouduttavat tekijät. Hoitotiede 2014; 26: 113-124
• Stolt M, Suhonen R, Koskenniemi J, Hupli M, Katajisto J, Leino-Kilpi H. Läheisen kuormittuneisuus muistipotilaiden kotihoidossa. Hoitotiede 2014; 26: 125-135
• Stolt M, Koskenniemi J, Katajisto J, Hupli M, Jartti L, Suhonen R, Leino-Kilpi H. Muistihäiriöitä sairastavien iäkkäiden henkilöiden elämänlaatu kotihoidossa ja ympärivuorokautisessa laitoshoidossa. Sosiaalilääketieteellinen aikakauslehti 2014 (in press)
• Hupli M, Koskenniemi J, Katajisto J, Stolt M, Suhonen R & Leino-Kilpi H. Kotihoidon ja hiljattain ympärivuorokautiseen hoitoon siirtyneiden suomalaisten muistipotilaiden terveys- ja elämäntilanne. Sosiaalilääketieteellinen aikakauslehti 2015; 52: 258-267
• Suhonen R, Röberg S, Koskenniemi J, Hupli M, Stolt M, Leino-Kilpi H. Muistipotilaiden optimaalisen palvelukokonaisuuden ominaisuudet. Hoitotiede 2015; 27: 259-273